Why I Eat Gluten Free

Cooking Food

I’ve received quite a few requests to write this post.  Sadly, a lot of other people are struggling with digestion issues these days, and I’ve gotten a bunch of questions as to why and how I discovered that gluten upset my stomach.

Let’s rewind back to 2008, when I was still in college.  At some point during my junior or senior year, I started having crazy episodes of burping – like forceful hiccup burps that would scare people away.  My grandma even told me to try and hide them best I could or I wouldn’t find a husband:)  I also had random upset stomachs and cramping, but just assumed this was from the occasional frequent rich meal and didn’t think much of it.  Everything I ate in college was from the dining hall or a restaurant, so who knows what was in the food.

After graduating from college, Matt and I moved to Boston. In Boston, we started shopping at Trader Joe’s and preparing most of our own meals. I remember starting to pay more attention to the quality of the food I was buying and we tried really hard to eat ‘healthy,’ but back then, that meant ham sandwiches and lots of processed TJ’s snacks.  Still, it was a lot better than what I was eating in college, yet my stomach problems became worse.  I would have nights of indigestion and horrible stomach cramps that would send me to bed, and the gross burping continued.  I decided to see a GI doctor in Boston to see if I could figure this out.

My doctor tested for Celiac’s and parasites, and did a flexible sigmoidoscopy (similar to a colonoscopy) to look for inflammation or damage to the intestine.  He didn’t find anything and gave me the lovely IBS diagnosis.  He recommended an expensive probiotic (VSL3) , a round of specific antibiotics, and TUMS. I remember asking him if there were any diet changes I could try, and he recommended trying a lactose free diet and more fiber, but other than that, he said diet changes likely wouldn’t make a difference (what!!??).

So, I tried a lactose free diet and those lactose pills that are supposed to help with digestion.  And then I tried a completely dairy free diet and nothing changed. I didn’t notice any difference with the probiotic, and since it was $50/bottle, I stopped taking it.

I started doing some of my own [internet] research which was helpful but also led me down a rabbit hole of worrying, feeling overwhelmed with limitless opinions and options.  I eliminated soy from my diet, and although I don’t think it helped that much, the information I read about processed soy has kept me away from it since.  I tried drinking apple cider vinegar and stomach acid supplements. I also tried the FODMAP diet, which was way too restrictive and frankly, made me very unhappy.

And then we moved to Durham. We started shopping at Whole Foods, and I started paying a lot more attention to labels and avoiding chemicals and additives that I didn’t recognize. I switched from coffee to tea in the mornings.  I saw a big difference in the number of upset stomachs and stomach cramps, but was still having a lot of burping, bloating, and constipation.  My mom had a young DO (doctor of osteopathic medicine) who she thought may be more into alternative solutions at her doctor’s office in Hillsborough, so I decided to see if she had any ideas.  She actually recommended a very low dose of antidepressants, saying that there was a correlation with gut health; she thought maybe that could help my sluggish digestion (which would also help the bloating)  even though I didn’t have symptoms of depression.  I tried the meds for a few months (can’t remember which one), but didn’t notice a difference and definitely didn’t want to stay on a more serious drug long term. She also recommended Miralax, which helped tremendously with constipation.  I took one dose every single day and started to feel a lot better day-to-day.

When I find GF fried food, I go all out:)

We moved to Dallas, and even though my stomach was much improved since college and Boston, I still had the burps and a lot of bloating, and I worried about taking Miralax for the rest of my life. My doctor assured me it was fine to take forever, but it seemed more like a bandaid for an underlying problem. My sister suggested I try a gluten free diet, but I really really didn’t want to give up gluten and just didn’t believe that it could be the problem given the earlier Celiac’s test came back negative.  It had been 4 years since I’d seen a GI doctor, so I decided to try one last time.  I did a lot more research and found someone who was right out of med school (hoping she was more up-to-date on research) and highly recommended.  The doctor listened to this whole story and then asked me what diet changes I had tried. She explained that there’s not a lot of medical research about non-celiac gluten sensitivity, but many of her patients were finding that it made a huge difference. At that point, I had tried almost everything else, so I knew I had to try it.  I also started taking another probiotic – Garden of Life Critical Colon Care – and it seemed to be helping a ton. I eliminated all gluten in April of 2014.  Two weeks in, I remember feeling really discouraged because I didn’t see any difference, but I had read that it can take a while. Right at the one month mark, something just changed, and I started to feel amazing.  And I’ve never looked back. It may sound silly, but it was like a miracle cure after years of trial and error. It took me a little while to wean off the Miralax, but I was able to stop taking it completely.

Gigi’s has a huge selection of GF cupcakes

For the first two years or so, I didn’t drink any beer, but I’ve found I can have one or two and still feel fine, especially if it’s a beer like Pacifico that barely has any gluten in it (less 20 ppm gluten). I tried a gluten challenge two years ago (Aka re-introducing gluten) – after one small piece of organic sourdough bread, I didn’t notice any real symptoms, but when I made a sandwich with two slices, I felt terrible for a good week.  I really thought maybe I’d be able to reintroduce it again some day:( That said, I’m so used to it now that it’s not really a big deal, and there are so many incredible gluten free baked goods! The thing I miss the most is savory bread – like croissants, biscuits, bagels, and crusty bread – because it’s really hard to find GF versions.  I’m just thankful that it’s not dairy because there is no stand-in for cheese! I’m also thankful I don’t have Celiac’s, as I don’t have to worry about cross-contamination or if there’s a smidge of soy sauce in a recipe at a restaurant.

So that’s my GF journey.  Hopefully it helps someone else out there!  I get a little annoyed when someone thinks I’m doing it to restrict calories or carbs. Let me be clear: I don’t believe in fad diets and have always been a lover of all things gluten:)  But I’m used to the judgy looks by now, and it is sooo worth it to feel good and not have to rely on a drug to get things moving!

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  • Nikki
    January 7, 2020 at 3:16 pm

    Long time reader, first time commenter lol…just had to say thank you for this excellent post!! It’s great to hear someone honestly lay out their experience with gluten intolerance/GI issues. Hearing that it took several diagnoses and that it can take time for the effects to show is valuable information for others experiencing the same. I’m really happy that you’ve found what works for you (and that there are more GF options than ever available). No judgement here 🙂

    • Laura
      January 15, 2020 at 3:57 pm

      Thanks:)

  • Kat M
    January 7, 2020 at 7:03 pm

    Thank you for writing this! Your symptoms sound exactly like what I was experiencing, especially the never-ending burps! I also saw doctors for years that told me diet changes would do no good and put me on meds that ultimately did nothing. About a year ago my symptoms took a turn and I was diagnosed via colonoscopy with ulcerative colitis, which I now take meds daily to manage. But it was this new GI doctor that suggested I try cutting gluten and it truly changed my life. (I also think that my years of upset stomachs somehow led to this diagnosis but he was adamant they are unrelated – I’m not convinced.) I also (thankfully!) don’t have Celiacs but I am strict about not eating gluten and I don’t have stomach aches anymore! Yea it’s annoying to miss out on pizza but it is SO worth it to feel like a normal person again. Glad we both are on the other side!

    • Laura
      January 15, 2020 at 3:57 pm

      That’s great! I’ve never met anyone else who had the same burps:) I also wonder if I hadn’t figured it out if it could have led to something more serious like UC.

  • Joanna
    January 7, 2020 at 9:29 pm

    I don’t know if I have commented before but thank you for sharing. I have IBS too and went though a similar exp. I still don’t know what the actual issue is but maybe it’s gluten…

    • Laura
      January 15, 2020 at 3:54 pm

      It might be worth a try. Set yourself up for success by sourcing some good GF bakery items to turn to when you really want to quit!!

  • Elle
    January 8, 2020 at 7:28 am

    Interesting. I had a similar experience, though more wind and symptoms at the other end (sorry TMI) and tried lots to no avail until I finally decided to try Zoloft. It took a while but I suddenly realised I wasn’t suffering anywhere near as much. I’m quite a naturally nervous person and a worrier so I think there was a big correlation there. Always good to hear others being open about this as it’s such an embarrassing subject!

    • Anita
      January 9, 2020 at 2:30 am

      Thanks for sharing your experience. I’m currently not eating gluten (and quite a few other things) as I’m breastfeeding a baby with some food intolerances. But I’m wondering whether I’ll go back to gluten as a regular part of my diet, I generally feel so much better without it. And I find it awfully easy to eat a lot of it in a day, toast for breakfast, sandwich for lunch and a pasta based dinner. So it’s been useful to help me widen my range of grains and carb sources and eat more healthfully (would have been nice to achieve that without the very upset baby, but that’s life!)

      • Anita Williams
        January 9, 2020 at 2:31 am

        Oops – my comment was meant to be on the main thread and not specifically in relation to the above commenter!

      • Laura
        January 15, 2020 at 3:53 pm

        Yeah – so easy to just eat tons of it!

    • Laura
      January 15, 2020 at 3:54 pm

      So interesting!

  • Kath
    January 8, 2020 at 1:03 pm

    I enjoyed reading this even though I got detailed updates along the way! I also think your gut was damaged from all the antibiotics you had to take for ear infections as a child and your face in high school. It’s the only plausible cause! I wish that meant it was curable, and maybe it will be in another 5 years.

  • Tracy
    January 8, 2020 at 3:56 pm

    Thanks for sharing! I have issues with dairy, yogurt is especially painful. I finally accepted it! After a month or so I don’t miss it as much, but the first couple weeks I could only think about cheese, lol. A nice plus, my skin looks much healthier.

  • Susan
    January 9, 2020 at 10:52 am

    Thank you for sharing your experience. Prior to being GF, I had the constipation and stomach cramps, along with severe frequent migraines (4-5 per month or more). It took me years of doctors focusing mainly on my migraines- as of 2009 I was having migraines weekly that were debilitating and causing me to miss work very frequently. I was miserable and the antidepressant I was on to stop the migraines was doing nothing. On a whim I went to an accupuncturist who was an integrative doctor as well as western MD. She ran blood work, including a food intolerance test. I remember getting the results and that my gluten intolerance was severely high. I was devastated (obviously) but eliminated gluten (and stopped taking the antidepressant I clearly did not need). Within 1 week I had no migraines- which was completely insane given my past few years. My head fog was gone the first day- the “noise” in my head I always had was not normal apparently but I never knew that. I have been gluten free over 10 years now and will never look back. The times I was accidentally glutened at a restaurant caused weeks of misery (I get an immediate migraine and digestion is thrown off for weeks). Unfortunately, I went gluten free before testing for celiac, so I do not know that for sure. But my doctor assumes I most likely have it so treats me as such.

    • Laura
      January 15, 2020 at 3:52 pm

      That’s crazy!! I used to have a lot of headaches too.

  • Kris
    January 9, 2020 at 1:35 pm

    I had the same kind of things happen to me. Went to a lot doctors and they finally said I had IBC-D. They put me on meds. Nothing seemed to help until I stopped eating wheat, night shades and (unfortunately) sugar. Now I feel fantastic and have lots and lots of energy. Thank you so much for sharing your story. Love your blog!!!!

    • April
      January 9, 2020 at 7:31 pm

      Thanks for sharing! I have hashimotos, which is a thyroid impacted autoimmune disease. Because of this, I don’t eat gluten. It’s imperative for hashimotos-havers to cut out gluten!

      Like an above poster, I suffered from debilitating migraines for over a decade prior to my diagnosis, and had leaky guy for about a year. The day before I quit gluten I had a terrible migraine, and I haven’t had one since!

      I really appreciated your point about seeking out younger doctors as well as alternative healthcare professionals. The older western doctors I have seen were unable to accurately diagnose me. Two said, while holding bloodwork that contained thyroid antibodies, that there was no way of knowing if I had a thyroid autoimmune disease! A third told me that gluten would have no impact on my thyroid because the endocrine systems and digestive systems are separate, which is not current best practice.

      I have found TCM doctors and functional medicine or integrative doctors to be the most helpful in combatting my symptoms and disease.

      • Laura
        January 15, 2020 at 3:50 pm

        That sounds so frustrating. So glad you figured it out!

    • Laura
      January 15, 2020 at 3:50 pm

      Thanks! I hate how they always turn to meds!

  • Mom
    January 10, 2020 at 4:32 pm

    I still feel sad you can’t have gluten, but I know how lucky you are to feel healthy again. Let’s hear it for smart doctors and sisters.